What is the KICSTOR Alliance?
The KICSTOR alliance was started in 2024 by Cara Abercrombie, Dr. Emma Baple, David Freccia, and Dr. Lettie Rawlins. After seven years working together within the KPTN Alliance, the team extended our mission to support all four proteins in the KICSTOR complex: KPTN, ITFG2, KICS2, and SZT2.
How can I learn more or join the KICSTOR alliance?
Please email us to join the group. Our email address is KICSTORalliance@gmail.com We will reach out to you to learn more about your family and connect you with relevant information, and include you on invitations to future events.
Can I donate to the KICSTOR Alliance?
The KICSTOR alliance is a small group that does not accept or solicit financial donations at this time. Our mission is to share information.
Is the KICSTOR Alliance affiliated or listed with any other organizations?
The KICSTOR Alliance is an offshoot of the KPTN Alliance, which is a member of the U.S.-based Rare Epilepsy Network. Our goal is to partner with organizations supporting KPTN, ITFG2, KICS2, and SZT2 mutations.
KICSTOR Alliance 